The Asian Breast Cancer Support Group was launched in 2011 by professor Anil Jain, consultant radiologist at the University Hospital South Manchester, and Lester Barr, Chairman of Genesis Breast Cancer Prevention, in conjunction with the Genesis Breast Cancer Prevention Appeal (now Prevent Breast Cancer) and the University Hospital South Manchester.
Breast Cancer incidence rates have increased in Asian women in the UK mirroring the increased incidence rates in the Indian subcontinent. Hence the overwhelming need to have a dedicated group to look at various aspects of Asian Breast Cancer as outlined in the objectives below. This group – the first of its kind in the UK – will require active partnership between health professionals and Asian breast cancer patients, their carers and interested lay public members.
Our main aims and objectives are:
- Support: Asian breast cancer patients have unique cultural and linguistic needs. The Group provides a valuable forum for patient and carer group members to interact and share their experiences with each other. The Group is providing this support to newly diagnosed patients as well as survivors of breast cancer through its Patient and Patient Support Initiative (PaPSI).
Partnership working between health professionals and patients/carers on the objectives below:
- Information: to consider what information is available at various steps of patient journey; whether it needs updating; translation into common Asian languages depending on the patients we serve; help develop written, audio, tablet and video materials.
- Communication: to support health professionals in communicating effectively with this group of patients eg is it meeting their needs, how we can improve it, role of interpreters and health professionals, giving patients more effective choice. We run two Cross Cultural Communication Skills Training Courses based on Cultural Humility model each year to help with this objective.
- Promote Breast Awareness: Help develop effective programme to raise breast awareness in Asian women.
- Promote Research and participation in clinical trials: Give their input to various research projects and represent interest of Asian patients, help increase participation of these patients in various research trials.
We would very much like to hear from you if you have any questions and would very much hope that you will actively participate in the above group. For further information please contact us.